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骨骼變形 器官受損
黏多醣症男孩:「我不放棄!」
No. 3606
黏多醣症男孩:「我不放棄!」
9歲的年紀,6歲的個子。
嘗過生死一線、管他「大部份得20歲命…」之說。
他總是昂首鏗鏘說出:「我叫朱逸朗, 我患上黏多醣貯積症,第六型。 」
「我係無畏無懼嘅!」
嘗過生死一線、管他「大部份得20歲命…」之說。
他總是昂首鏗鏘說出:「我叫朱逸朗, 我患上黏多醣貯積症,第六型。 」
「我係無畏無懼嘅!」
94%
$698,217 of $750,000
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- Lifewire Admin$16,935.0008/03/2024 - 02:47
- Lifewire Admin$19,519.6003/05/2024 - 14:15
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- Lifewire Admin$10,500.0007/24/2023 - 15:40
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- Lifewire Admin$31,939.0001/05/2023 - 16:16
- Lifewire Admin$36,030.0007/08/2022 - 16:51
- Anonymous$1,000.0012/01/2021 - 22:32
- Lifewire Admin$10,000.0005/25/2021 - 11:30
- Lifewire Admin$29,405.0004/12/2021 - 18:19
- Anonymous$200.0003/29/2021 - 02:25
- Lifewire Admin$5,144.5003/09/2021 - 17:56
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- Lifewire Admin$138.3003/09/2021 - 17:54
- Lifewire Admin$100.0003/09/2021 - 17:53
- Lifewire Admin$30.0003/09/2021 - 17:51
- Lifewire Admin$2,500.0003/09/2021 - 17:51
- Anonymous$800.0002/13/2021 - 02:26
- Anonymous$300.0001/21/2021 - 08:46
- Lifewire Admin$50,000.0001/06/2021 - 12:47
- Lifewire Admin$4,900.0009/01/2020 - 12:22
- Anonymous$100.0006/05/2020 - 22:46
- Lifewire Admin$30,000.0006/05/2020 - 13:42
- Lifewire Admin$30,000.0002/26/2020 - 11:23
- Anonymous$100.0011/23/2019 - 18:05
- Lifewire Admin$65,045.1011/01/2019 - 18:47
- Lifewire Admin$100,000.0008/14/2019 - 16:14
- Lifewire Admin$10,300.0007/03/2019 - 19:51
- Anonymous$500.0006/01/2019 - 00:00
- Lai Tak Man$15.0005/30/2019 - 22:13
- Anonymous$100.0005/29/2019 - 11:53
- Anonymous$100.0005/25/2019 - 23:37
- Lifewire Admin$16,596.7003/06/2019 - 13:31
- Lifewire Admin$13,071.4002/27/2019 - 10:25
- Anonymous$2,380.0002/25/2019 - 17:00
- Lifewire Admin$23,394.0002/21/2019 - 16:19
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最新捐款
Anonymous
$1,000.00
11/30/2024 - 06:31
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$1,100.00
11/30/2024 - 05:42
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$4,550.00
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