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兄弟同患黏多醣 母:只想再聽哥哥叫一聲「媽媽」
No. 3628
看似簡單的願望卻是遙不可及。
一家四口,兩個兒子活潑可愛,本是一幅美滿家庭的寫照,孰料突然發現兩子俱患有罕見病黏多醣症3A型(Mucopolysaccharidosis IIIA,簡稱MPS IIIA)。哥哥身體機能和智商退化至有如嬰兒,更可能活不過14歲。父母唯有希望弟弟接受的試驗性幹細胞治療能逆轉病情。
一家四口,兩個兒子活潑可愛,本是一幅美滿家庭的寫照,孰料突然發現兩子俱患有罕見病黏多醣症3A型(Mucopolysaccharidosis IIIA,簡稱MPS IIIA)。哥哥身體機能和智商退化至有如嬰兒,更可能活不過14歲。父母唯有希望弟弟接受的試驗性幹細胞治療能逆轉病情。
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